CereCare

Center for Children with Cerebral Palsy

Shanghai, China

Contents
What is Cerebral Palsy?
Global Statistics
Traditional Treatment
CereCare Mission Statement
Therapy and Treatment at CereCare
  - acupressure
  - conductive education
  - Japanese psychological rehabilitation
About the founder
How you can help - sponsor a child
Contact information

 

What is Cerebral Palsy?

Cerebral = “of the brain”

Palsy = “lack of muscle control”

Cerebral Palsy (CP) is a term used to describe a group of disorders affecting body movement and muscle co-ordination. The medical definition of CP is “a non-progressive but not unchanging disorder of movement and/or posture, due to an insult to or anomaly of the developing brain.”

Development of the brain starts in early pregnancy and continues until about age three. Damage to the brain during this time may result in CP. This damage interferes with messages from the brain to the body, and from the body to the brain.

The effects of CP vary widely from individual to individual. At its mildest, CP may result in a slight awkwardness of movement or hand control. At its most severe, CP may result in virtually no muscle control, profoundly affecting movement and speech.

Cerebral Palsy is

NOT contagious

NOT hereditary

NOT life-threatening

NOT automatic mental retardation

Person with CP does not necessary mean that he/she is mentally retarded. People with CP enjoy satisfying careers, university education, social life and become parents.


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Global Statistics

It is difficult to estimate exactly how many people have CP. Many people with mild CP are never diagnosed, while others may have multiple disabilities which overshadow their CP.

It is estimated that one out of every 500 babies, and up to one in three premature babies are affected to some extent.

CP in China

It is estimated that there are 310,000 children with cerebral palsy in China. The survival of low birth weight infants is lower in China than in developed countries, and as the survival of low birth weight infants improves the prevalence of CP will rise.

In China, the percentage of babies born with CP runs from 0.18% - 0.59%, i.e. there are approximately 5 babies with CP for every 1,000 babies born.

Schools by law are required to accept handicapped children. Unfortunately there is no wheelchair access, no handicapped facilities in restroom; it is therefore impossible for anyone with a physical handicap to attend a normal school.


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Traditional Treatment

CP is not considered to be a curable condition. Much, however, can be done to lessen the effect of CP and to help people with CP to lead independent lives. Treatment is guided by the symptoms exhibited and may include physical therapy, occupational therapy, speech therapy, casts, splints, braces, appropriate glasses and hearing aids, medications, special education and in severe cases, orthopedic and soft-tissue surgery and/or institutionalization.


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CereCare

We believe that each child should have an individualized treatment plan which assesses the child’s performance, sets goals and specifies which supports are required. The key elements to minimizing the handicapping effects of CP are :

-         Proper management and treatment

-         An environment which give the children with CP a good sense of self- esteem.

-         To have educational opportunities and to have access to recreational facilities and opportunities to develop friendships

Each child must enroll for a minimum period of three months. He/she is there seven days a week paying a tuition of 9,000 RMB/term. This includes – full room and board, acupressure sessions, individualized physiotherapy sessions, water treatment, Conductive Education classes and general knowledge classes.


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Mission Statement

Creating an environment by providing innovative healing techniques, education, research, healthcare, so that children with cerebral palsy (CP) can reach their ultimate long-term goal of realistic independence and realize their full potentials. They can then go on to lead meaningful lives and contribute to society.

It is the firm belief of CereCare that with proper management, persons with CP can go on to lead meaningful lives. The most famous example is the Irish author Christy Brown, whose struggles and triumphs growing up with CP have been made into the Oscar-winning movie – My Left Foot.


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Therapy and Treatment at CereCare

1. Unique acupressure

Developed by our founder, Lu Shun Ling who while being treated by seven acupressure masters became their pupil. She consolidated everything she learned from them and come up with an acupressure treatment for CP children with remarkable results.

2. Conductive Education

Conductive Education is developed from the work of Austrian-Hungarian physician Dr. András Petõ. From the late forties till his death in 1967 Petõ worked in Budapest with adults and children with motor disorders. It was brought to Hong Kong and perfected in the early 80s.

Conductive Education is neither therapy treatment nor cure. Conductive Education acknowledges that society may erect terrible barriers to children with disabilities, for which social action is required.

Conductive Education asserts that there is much more to living and development than just the medical and the social. There is the psychological too and, as in every sphere of human life, this is best addressed by education in its widest sense. Further, as in all excellent education, the goal of Conductive Education is to create autonomous learners who can go on to learn, adapt and develop under their own direction, because that is how they have learned to be.

Conductive Education's goal is learning how to learn, learning to find one's own ways to achieve personally formulated goals, experiencing greater independence and exercising choice.

In Conductive Education learners are regarded as individuals who need and ought to learn for themselves. Moreover, each individual has to be taught as a totality, a human being, rather than an assembly of 'needs' or deficits.

Movements and skills cannot be taught on their own, only within complex co-ordinations which have meaning, intention and purpose and are social in their origin. Intention and purpose require the will to try and emotional commitment to learn. Creating social and personal situations that lead learners to find their own emotional commitment to learn, 'conduction', is the central and defining feature of conductive education, it refers to teaching, teaching moreover with a particular style, in which learners are led (i.e. conducted) to become active learners.

3. The plan is to implement the Japanese Psychological Rehabilitation - Dohsa-Hou - at the beginning of 2006.


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About the Founder

Lu Shun Ling was born with CP in Shanghai in 1934.   As a result of her disability, she was incapable of taking care of herself as a child and was thus overprotected.  She was not diagnosed until she reached the age of 18, after which she was sent to HK for treatment.   In Hong Kong, between 1953-1956, she endured all kinds of treatments that did not work. She found the “Traditional Chinese Acupressure” to be the most effective method that helped her.  

She decided to return to Shanghai in 1956 as she felt that there are more good acupressurists in China.   The seven masters that assisted in her healing also became her teachers.   At the age of 30, she was able to walked out the front door on her own for the first time in her life.  

Lu Shun Ling decided at that time to take control of her life and learn how to treat CP.  Being unable to attend university due to her affliction, she took correspondence courses offered by Television University and read Western and Chinese medicine.   As she was unable to write legibly, even though she passed her oral finals with flying colors, she was denied her diploma.   Over the years, she developed her own special technique of “Acupressure Treatment” designed to empower people afflicted with CP to have some form of normalcy in their lives.

Lu Shun Ling has exceptional empathy and compassion for the handicapped.  With the support of her parents, she started working with handicapped people in 1980 in association with the Red Cross and starting her own center for handicapped people in 1985. .

After reading a newspaper article in the newspaper about how a father walked out from his family after learning that his wife gave birth to a CP baby, she decided to concentrate on children with CP.   Using money left to her by her parents, she started a clinic in 1992.   She remodeled the garage and built an annex in the garden and started a free clinic and physiotherapy center. 

Over the years, she has treated dozens of children with astounding results.   She has been honored numerous times by the city of Shanghai and received frequent press coverage.

To further her commitment to children with CP, Lu Shun Ling recently sold the house left to her by her parents, brother and sisters and founded CereCare which opened in November of 2003.

Many people do contribute and volunteer to the community but few are willing to risk everything in their lives like Lu Shun Ling has done.   She is a shining example of a person who is selfless, dedicated and committed to her vision of a better world for those that are less privileged.  We are committed to supporting her in her endeavors to help children with this disability. 

We commend and support her for the outstanding work she has done and will continue to do. It is our hope to be worthy of the legacy she will leave in the hands of those of us who will continue her work. It takes committed citizens to ensure the long-term success of private clinics to help children who suffer from CP and other disabilities.

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How you can help

Our mission is to find people who are actively supportive of assisting the less privileged on the road to self-empowerment via the vehicle of private funding. To sponsor a child, please contact Iris Lieu of the CereCare Executive Committee at:

25 Chang Qiao 8th Village
Shanghai, China
200231

Phone (86-21) 5439-4328
Fax (86-21) 3408-1119
Cell (86) 13917883233

Email smilccc@yahoo.com

From time to time we also welcome assistance with English teaching, and donations of particular equipment. Please contact Iris Lieu on smilccc@yahoo.com if you can help.

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The CereCare website (mostly in Chinese) is at www.zhikang.net

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